Category Archives: Death

The Labor of Death

Unless there’s a sudden trauma,

dying is labor.  It’s clearly labor.

The breathing becomes more rapid,

almost a panting.

However, instead of laboring to enter this world

from the comfortable confines of the womb,

there is the labor to exit this world.

There is a struggle as the self gradually allows the soul to separate

from the familiar womb of the body.

Except the body is not a womb,

it is more like a cage

or a very heavy coat

encasing a soul whose nature it is to fly.

But we forget that.

We cling to the body because it’s all we know.

It’s all we’ve known our whole life long.

We forget.

We forget what it was like before we slipped into the womb

to begin this life.

If only we could remember.

If only we could remember

how very different dying would be.

 

~ Cynthia Greb, 2016

http://www.cynthiagreb.com

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Beauty and Loss All Commingled

Today I spent two hours with my ailing mother instead of the usual four to six.  And as I indulged in the sacredness of time alone, I discovered myself sinking deeper into my “feeling body.”  Once again, I discovered that being too busy is anathema to the soulful existential questions and emotions I need to let bubble to the surface once in a while.

Mom’s health is declining.  It hasn’t been that stellar for quite a few years, but now her body is starting to fail in ways that are no longer remediable.   I found myself wondering how conscious she is of her decline and when is the right time to discuss it all.

My mother has suffered from mood swings and a fair amount of depression these last several years.  Even when she was living in her own home, surrounded by her loving (albeit increasingly demented) husband, excellent and compassionate caregivers, and a regular rotation of visiting children and grandchildren, she frequently found reasons (not always easily discerned by us) to dissolve into tears.  Being in a nursing home the last year and a half has not resolved her feelings of depression.

Fortunately, when I inquired recently of the RN on duty about the possibility of an anti-depressant, it was subsequently approved by the facility physician.  I am not someone who ordinarily believes in indiscriminate pharmaceutical solutions, but her crying jags were disconcerting and I simply wanted her to feel better.  (And Mom was, in no way, open to therapy.)

So the question of the hour is:  do I open the can of worms that end-of-life discussions precipitate?  Or shall I let her “feel good” for a little bit longer?

Unlike Dad, who embraced the idea of heaven and, though he loved life, looked forward to “going home,” Mom has only ever talked about death when she was unhappy with her life.  I find myself hesitating to talk about something that will likely send her back into a downward spiral.

On the other hand, as someone who worked for two different hospices, I know how vitally important it is to have the opportunity to talk about these matters and to work through all the myriad emotions which certainly arise.

And so, I pray for guidance to know when the time is right.

Meanwhile, after leaving the nursing home earlier today and finishing a couple errands, I arrived home and dressed for a walk in the cool October air.   As I ambled down the road, I was struck over and over again by sights so achingly beautiful, I found myself invoking God’s name in whispered awe.

The trees are aflame with color this year—golden yellows, vibrant oranges, corals, and scarlets.  Breathtaking and heart-opening beauty is everywhere.  Even the skeletal remains of Queen Anne’s lace and the dark petal-less heads of black-eyed Susans are beautiful.

In addition to the splendors of autumn, there are lingering roses, hibiscus blooms, and purple clovers—splashes of summer in the midst of dying grasses and fallen leaves.  Life and death are all mixed together in this seasonal transition.

As I walked I found myself feeling the grief of Dad’s absence in my life.  Like me, he loved nature.  We would have had some fine walks together this year had he still been alive.  But I know we are both immersed in beauty and love—he where he is and I where I am.  And Mom, too, though she is not as skilled at recognizing it or appreciating it.  Then again, her childhood was not as special as that of Dad or me and my siblings.  When she was little she was abandoned by those who brought her into the world, and so abandonment is often her default emotional setting (even now, over seventy-five years later.)

Beauty and Pain.  Life and Death.  Love and Loss.  It’s all here.  We are surrounded by it all.

As my wise friend Kristy recently said, “Some things in life cannot be fixed. They can only be carried.”*

May I carry it all with grace.

 

http://www.cynthiagreb.com

 

The Next Season

This is day #6 of being with parent #2 as she makes her slow exit from this life.

It’s been an important and exhausting time.  I am so grateful to be here with her, the woman who gave me birth.   And, as anyone who has maintained a long vigil with someone who is very ill knows, it’s a challenging road.

Today I was feeling very low energy.  I was tired, sad, overwhelmed.  Are these the correct words?  I don’t even know that I can accurately categorize how I was feeling.  I only know that I was depleted.

Fortunately other family members were going to be spending time with my mother this morning, so it gave me the opportunity to indulge in some alone time.  I am one of those people who needs a lot of time by myself, and I hadn’t had much solitude this week.

I walked to the side of my brother’s property and down the long leaf-strewn path toward the edge of a beautiful stream.  I found a rock in a pocket of sun and sat myself down upon it.  And that’s all I did.

I didn’t have the energy for anything else.  I didn’t pray; I didn’t prod myself to change or shift or buck up; I didn’t try to figure anything out.  I just sat.

I felt weighted.  I felt listless.  My spark was gone.

I just sat.

Gradually, eventually, the world began to work its magic on me.   After maybe ten or twenty minutes, I had the energy to lift my head.  I noticed more trees had changed color since the last time I’d walked to this particular spot.  There was one tree with beautiful bright coral-colored leaves.  And the sky was a beautiful cloudless blue.

I began to notice leaves dancing through the air, letting go of the trees onto which they had held themselves for many months, and spiraling toward the creek which gently carried them downstream.

I became somewhat conscious of the beautiful metaphor unfolding around me, but mostly I became aware that my energy was ever so slightly beginning to rise.

The world is a beautiful place.   When I’m sad or tired, it’s harder to focus on the beauty.  But it’s there, just waiting to uplift me whenever I take the time to immerse myself in it.

Can I help my mother release her grasp on this beautiful life so she can embrace the next even more beautiful one?  I don’t know.  That is my prayer.  My prayer is that she be at peace with the change of the seasons.  Not just spring and summer, but fall and winter, too.

We cannot stop the wheel from turning.

And there is no end in a wheel.  There is only the next season.

October 2013 583

http://www.cynthiagreb.com

“Deathiversaries” and Post-Death Birthdays

Mom n Dad laughing

What do you call a birthday when that person is no longer on this earth?  I guess it’s still the anniversary of his birth, although we are no longer counting the years he has lived.

Dad’s birthday is April 30th.  I wrote the first draft of this piece back in February on the first anniversary of his death.  But then I set it aside to read it and revise it later.  And “later” turned into another month.  And now I’m dusting it off one more time.

It’s not easy to remember death.

There are so many wonderful, wonderful things to remember about Dad: his teasing and horsing around; his affection for his wife, kids, and especially his grandchildren; all his years of hard work supporting his family and never complaining; his love of naps; the way he always had time for his family; his dedication to the churches he attended and served; all the little vacations we took together; his love of food; his gregarious personality; his gratitude; his love of nature.  I could go on and on.  But sadly, I seem to be stuck in an endless review of his last few months.

If he had started to drastically decline and then simply continued that decline, I think I could have accepted that.  After all, death comes to each one of us, and after several years suffering the indignities of Alzheimer’s, I’m sure, at some level, he was more than ready to let go of this life.  As a matter of fact, for several months, while he was still living in his home, he would repeatedly tell us, “I’m ready to go home.  Please take me home. Please take me home.”

We had thought he was confused and couldn’t remember that this was his own home.  We tried in vain to convince him that this was the home he’d built with his own two hands when the rancher had become too small for his burgeoning family.  We pointed to all the pictures of the family on the mantle.  We said, “See?  There we all are!  This is your home.”  But it made no difference.  He was caught in a sad loop, not realizing he was in his own home.

At least that’s what we thought at the time.

It was heartbreaking for us as well as frustrating.  We had worked really hard to make sure he stayed home as long as possible.  So over and over we tried to convince him that he was home.  Only a week ago did I realize we were absolutely doing the wrong thing.

I had been a spiritual counselor for two different hospices, so I should have known better.  Unfortunately, I had never read the book Final Gifts during my time at those hospices.  If I had read it then, I would have understood that often dying people speak in metaphors.  Instead of dismissing Dad’s comments as the mark of a very confused man, instead of trying to re-orient him to this earthly consensual reality, we could have been brave enough to say, “Dad, are you talking about your heavenly home?”

I cry to think how much peace we could have given him if we had opened the door to this conversation.

When he was admitted to the nursing home in November of 2013, he had definitely declined further, but he was still walking, talking, and eating.  Then he fell and suddenly he couldn’t walk or eat on his own any more.  Suddenly he also began to exhibit very bad tremoring, shaking and sudden jerking which the doctor believed was an indication of more advanced Parkinson’s.

The jerking was heartbreaking to see because it had come on so suddenly and it completely interrupted his ability to rest.  Rest had always been very important to Dad, but even more so as his Alzheimer’s escalated.  It was as if he just needed to escape from the world for a while because it had become way too confusing for him.  For a while, he was sleeping, off and on, about fifteen hours a day.

Because of those horrible jerks, we started Dad on this medication that relaxed his body so the jerks would cease.  But unfortunately it also meant he was rather “out of it” a large portion of the day.  The nurses hated giving him that medication because just as he was coming back to himself, talking and joking around, it was time for the next dose.  We didn’t know what to do.  But it seemed he was safer and calmer, as well as more rested, so we opted to keep him on it.

Then something happened that took the matter out of our hands.  He fell into a bad fever.  He got so weak he could no longer safely eat anything.  Even drinking became hazardous.  And so they had to discontinue the med.  There was no way to safely give him anything.

And then, miracle of miracles, he got better!  His eyes were open, he was talking again!  We were so relieved.  And the Parkinson’s symptoms never came back!

By this time, we had put Dad on hospice care.  And because of the lingering effects from the fall, his prolonged fever and his lack of food, he had become very, very weak.  Once in a while they tried to walk him down the hall, an aide on each side and one behind him with the wheelchair in case he needed it.  But generally he was in a geri-chair (a kind of cushioned chair/lounge chair, like a recliner on wheels) or in bed.  And he began to get a bedsore, which often happens when people are lying down most of the time and not getting enough nutrition or circulation.

During this time I continued to agonize.  Should we take him off hospice so he could get some physical therapy?  Did he have a chance at recovering if we pushed him a bit?  Would he be able to walk again?  Should we try to take him out to breakfast? (This was one of his favorite things in the world, although it was increasingly less pleasant for the rest of us because he would become agitated when the food didn’t arrive right away or if the waitress wasn’t prompt enough bringing refills on his coffee.)

Dad kept going up and down, up and down.  I could never figure out exactly if he was dying or just going through a momentary dip in his health.  I kept on second-guessing our choices.

Then one day he came down with another fever.  This time he didn’t recover;  he was gone by the next morning.

Ironically, only two days earlier, I had called the hospice social worker so I could talk over whether or not we should take him off hospice so we could get him into physical therapy again.

I had assumed this fever would be similar to the last one – unpleasant, but temporary.  Instead it was one of several signs of his approaching death.  I wish the hospice staff or one of the nurses would have recognized the signs and given us a heads-up so we could have been around him while he was still conscious that last day.  I wish I had recognized the signs.

I had been with Dad until about 2:00 pm.  I left when he appeared to be more at ease.  I wish I had stayed.

I’m sure a lot of us do this when our loved ones pass.  We wonder what we could have done differently.  We wish we had been there more, shared our love, withheld our anger.  Fortunately, I know Dad knew how much I loved him.  And I’m also grateful we only had one episode of anger toward one another in my whole life.  I realize that this is a tremendous gift.  But I have been having trouble letting go of those last three months of his life.  I can’t seem to let myself be at peace about it all.

Perhaps writing this right now will help to shift that.

Sending you love, Dad.  Maybe we can start counting the anniversaries of when you went Home.  Congratulations on so successfully completing your life here on Earth.  And congratulations on completing your journey Home.

You are not forgotten.  We love you still.  And always will.

 

http://www.cynthiagreb.com

Making Peace with Her Dying

Today I received word that a friend has entered that brave lonely path that leads toward death.  She has had several false starts on this road before, but this time her daughter-in-law told me it feels different.  She is now refusing food and drink.  So yes, it seems my friend has chosen her time and it is fast approaching.

When I heard the news I felt heartsick, not necessarily because she would be leaving this earthly plane, for I understand our time here is limited.  I was sad because I am 2000 miles away and the earliest I could possibly get to her would be at minimum, eight days away.  I am sad because in five short months she and I have become dear friends and because there is love between us and because I want to be there to offer comfort if I can and because I want to say goodbye.

Vera is one of two women I have helped care for over the course of this past year.  Most of the time she didn’t need a lot of support—some assistance bathing, some simple meal preparation, some support walking, or when she was especially weak, transferring her to and from a wheelchair.  In between these tasks and some simple cleaning, we would chat.  We enjoyed one another.  It didn’t matter that we were 35 years apart in age.

One of Vera’s favorite things was when I massaged her feet.  She had never experienced that particular luxury before I came into her life, and without fail, it would make her purr with delight.  I also massaged her hands and eventually even her head.  She was surprised how delicious a good head rub could be.  Of course I had to be especially careful not to ruin her lovely white-curled coiffure.

My favorite memory of Vera is the time I drove her to a diner forty minutes away.  She and I are residents in a little town of approximately 1500 people.  There are three restaurants in town, only one of which I knew was to her particular liking.  So I decided it would be a grand adventure for us to travel to this particular diner instead.

This particular eating establishment was run by a woman probably in her early 60’s who knew how to make some decent food, and even better, bake some incredibly delicious breads and desserts.  So Vera and I that day had the pleasure of chatting amiably while driving through the great San Luis Valley of Colorado and then continuing to enjoy one another’s company while sampling some truly tasty soup, toast, French fries, and delicious homemade pie.  She loved it; I loved it.

When I heard the news about Vera’s recent downturn this afternoon, I sat for a while in the car in the driveway and allowed the sadness to fill me up.  While sitting there, I gazed at the branches of the trees against a blue sky and the colorful collection of birds and squirrels munching on birdseed, and I then allowed myself to feel a spark of gladness.  There can be both sadness and gladness all in the course of a few breaths.  Sometimes it’s a choice we make.

When I was ready to come inside, I was greeted by the cacophonous joy of the two dogs in my care who wildly adore me.  It’s hard to be sad amidst all that lovestruck jumping and wagging.  I let the dogs outside and then I sat in a chair in the welcome patch of sun shining through the front door.  I practiced breathing in and out, like a gentle wave rolling up on the beach and then pausing for a moment before sliding back into the sea.  I sat in that lovely sun, which had been hiding for many wintry days, and I knew that whether I was able to be there or not, all would be well.  It was clearly out of my hands.  Vera would leave when she and God decided the time was right.  And Vera would know I loved her whether I was physically present or not.

All is well.  All is well.

 

Dad’s Last Day

Once again, there is a part of me that would rather avoid writing about a day that is painful to remember.  But I’m beginning to learn that I need to acknowledge how I feel, even when it’s not  pleasant.  Otherwise these things get stuffed into the subconscious corners of my mind and hidden in my body’s cellular memory.  It’s healthier for me to remember, acknowledge, feel, and heal.  Also, I believe this could be helpful for others who are witnessing the decline of a loved one. There aren’t always professional people around to help guide us through these tough times.

So, two and a half months ago, my father died.

I was with him the morning before, as I was almost every day for three consecutive months.  I obviously knew him well and when I touched him that day, I had the feeling he had a fever.  I reported my concern to the nurse on duty and my intuition was validated.  This was the second time in three months I noticed him having a fever.   The nursing home staff missed it.  Both times.  I also noticed his breathing seemed compromised.  I heard some rattling in his throat.

Now, I have to confess that I have worked for two different hospices.   Thus I was quite familiar with the term “death rattle.”  It happens to many patients as they get close to the time of their death.  I knew this, and yet I was in complete denial that he was close to death.  I rationalized that rattling sound.  I thought, ‘Well, he seems to have a cold or the flu.  Some people probably make this sound when they have a cold and can’t breathe well, right?’

He’d had a bad fever before – maybe 40 days or so prior to this.  At that time, he was so weak he couldn’t eat, swallow liquids, or talk.  We thought he might die at that point, but miraculously, he came through.  After about three days he got more energy and was able to eat and talk again.  I foolishly assumed this fever would follow the same pattern.

I didn’t really think he was unconscious.  True, he was no longer verbally communicating, nor was he opening his eyes, but this, too, he had done before.  He was just resting.  That’s what I told myself.  He was tired and weak from the fever and he was resting.

He was still inputting and outputting.  He’d had food the day before.  He was still urinating and defecating.   Don’t the digestive systems of people nearing death shut down?

There were so many reasons I thought he “just had a fever.”  And although I was very worried about his comfort level, I certainly wasn’t worried about him dying.  Not right then.  (Although I confess I found myself thinking of that phrase “death rattle” over and over again that day.   I remember mentioning the rattling sound to a  nurse, but I guess I was too scared to specifically ask someone about the significance of it.)

After about four hours, Dad seemed more comfortable.  He seemed to be resting.  And so I allowed myself to go home, making sure to first tell the nurse to call me if he anything changed.   Allowing myself to go home was something I had learned over the past few months.  I had discovered that if I visited for more than  four hours or so at a time, I started to crash energetically.  So I had finally begun to be more gentle with myself.  I generally stayed for two to four hours at a time with Dad.  And then I also visited for a few hours with Mom, who lived on a different floor.

“Home” at that point was my parents’ home, although neither parent lived there any longer.  Due to financial considerations, they were both now in the nursing home.  So the family home was now empty of humans except for me.  I was back in Pennsylvania for an extended period of time  trying to support both parents as they adjusted to a new living environment.  I was also supposed to be sorting through and dealing with all the family possessions at the house so that it could be transferred to the bank.  (We’d had to get a reverse mortgage.)

Anyway, after this long and exhausting day monitoring and constantly trying to fine-tune Dad’s environment so he could be more comfortable, then spending time with Mom, and then going home to be with my two sisters for a bit, I crawled into bed at about 9:30.  As always, out of habit, I turned off my cell phone before going to bed.  There just weren’t enough emergencies in my life to warrant keeping the phone on.  I’d come to value my sleep.

I slept soundly that night until about 1 a.m. at which time I woke to go to the bathroom.  I glanced at my phone before climbing back into bed and saw that I’d received a text from my sister, Karen.  She reported that she was with Dad and that he was on oxygen and morphine.

Amazingly, I was still in denial.  I still didn’t really think he was dying!  But thank goodness, I went in.  I also checked my other phone message and discovered it was the weekend nurse reporting to me that Dad had taken a turn.  I had missed her call, too!  It was by the grace of God that any of us got those calls from the nursing home because my sister seldom looks at her phone at night either.  But uncharacteristically she was up;  she was babysitting her new grandson while her daughter and son-in-law were at a going-away party.  I will be eternally grateful for this divine timing.  If Karen hadn’t been awake, she might never have gotten that call.  If I hadn’t had to pee, I might never have seen Karen’s text.  I can’t even imagine how I’d feel if none of us had received these messages and Dad had died all alone.

So there my sister and I were, at his bedside, watching him as he lay there very still and breathing very rapidly.   We held his hand.  We whispered to one another.  We walked out into the hall to make calls to family members.  We prayed.

Finally at  about 4:00, my sister tried to catch a couple winks.  She hadn’t had any sleep at all that night.  Unfortunately or fortunately, there was no comfortable furniture for her to try to relax in and so she was still half awake when Dad’s breathing suddenly and unexpectedly slowed.  Karen, a registered nurse, became alert immediately.  We watched him for a minute or two and then she said, “I think I better go get Mom.”

Karen left the room, caught the elevator, woke Mom up, quickly talked with her, got her dressed, got her in the wheelchair, caught the elevator again, and brought Mom into Dad’s room in record time.

Like me, Mom was slow to realize how very, very close to death Dad was.  We wheeled Mom next to his bed and she held his hand.  Karen left the room to call her husband and at that time I saw Dad stop breathing.  I looked again, of course, checking to make sure it wasn’t simply a case of apnea.  No, he’d stopped breathing.  I was surprisingly calm.  Whether it was to protect Mom or because there was some relief that his long struggle was finally over, I don’t know, but when Karen came back in, I simply mouthed, ‘I think he’s gone.’

My sister wisely said to Mom, “Why don’t you give Dad a kiss?”  We both helped Mom to stand so she could lean over and give him a kiss.  And a minute later Karen told Mom that he was gone.

Dad waited for Mom.  He had timed it perfectly.  Also, amazingly, the  whole entire family, save one son-in-law, was in town.  My youngest sister and niece were visiting from Georgia, Karen’s son happened to be visiting from Alaska, my niece Sarah had just had her first baby and her husband had not yet left for basic training.  I was there, of course, visiting from Colorado, and both my brothers and my one brother’s family all lived nearby.  Except for my one disabled brother-in-law, everyone in the family “just happened” to be in town.   Dad’s wife, all five children, all six grandchildren, and two great-grandchildren.  We were all there.  We’d all be able to say goodbye.  What a blessing.

I am convinced that somehow Dad “knew” this.   I believe at some level his spirit knew the appropriate time to leave.  I believe all of this was divinely orchestrated.

Dad chose how to live and he chose when to die.

He was a model for us all.

 

Thanksgiving Past

Today is Thanksgiving and I just realized that last Thanksgiving was the last time my family was all together in the family home.  Dad had been admitted to the nursing home one week before and although we were a little nervous that bringing him home again would further disorient him, it turned out okay.  Both parents, four of the five children, oodles of grandchildren and one great grandchild were all present.  I was so very grateful to have had one last holiday with most of the family gathered.

Dad was able to walk and eat that day.  He was able to converse a little bit.  But within a week or two he had fallen and hit his head and after that he declined steadily.  By Christmas, he was no longer able to eat on his own or walk on his own and he had his eyes closed most of the time.  And on the morning of February 16th, he was gone.

So many changes.  Dad gone, Mom in a nursing home, the family home now owned by the bank, both my sisters and my niece and her family all now living in the South, me out West, my nephew in Alaska.  We will never all be together again in this physical form.

On the morn of Dad’s passing, the entire extended family was in town, though we weren’t all in his room at the same time.  That was the very last time the whole family (save for one brother-in-law) was all together in one county at one time.

How do we make peace with so much change?  I guess we recognize that change is a part of life.  Every minute, each one of us is getting older.  Babies turn rapidly into toddlers, children into teenagers, teenagers into parents, middle-aged people get grayer, older people get more feeble.  It’s the way of Life.

Thank goodness we have Birth to balance out Death.  Thank goodness I believe in an afterlife.  I don’t know how people can live without a belief in Life following Death.

I know there are many planes of existence and except for a gifted few, we generally live only on one of them.   But there are many.  And I know Dad is simply in another realm.  And I know he is resting from his Earthly ordeal.  And I know that he is aware of what is going on in our lives.  And I know that he loves us and that we love him and neither Time, nor Distance, nor Death will ever change that.

Just wanted to acknowledge my father on this day.  I love you, Dad.  I am so grateful to have had you as my father.